Lake County Gazette

During a recent General Assembly session, Greenbriar third-grader Maya Ottenheimer experienced state government in action. Accompanied by her father, Scott, and grandmother, Karen Ottenheimer, Maya traveled to Springfield at the invitation of State Rep. Tracy Katz Muhl to raise awareness for a rare genetic disorder.

Maya, who is diagnosed with Williams Syndrome, stood alongside Rep. Katz Muhl as she introduced a resolution designating May as Williams Syndrome Awareness Month in Illinois.

“After Rep. Katz Muhl read the resolution, everyone on the floor clapped, and then in Maya fashion, Maya yelled, ‘Everybody clap louder!’ That got a nice laugh and then even louder applause,” said Scott Ottenheimer.

Maya also had the opportunity to meet many other legislators. “Our goal is to continue spreading awareness around Williams Syndrome and hopefully increase fundraising for research,” her father added.

According to the Williams Syndrome Association, Williams Syndrome (WS) is a genetic condition present at birth that can affect anyone. It is characterized by medical problems including cardiovascular disease, developmental delays, and learning challenges. These often occur alongside striking verbal abilities, highly social personalities, and an affinity for music.

Below: Maya Ottenheimer cheerfully acknowledges the state resolution introduced by state Rep. Tracy Katz Muhl for Williams Syndrome Awareness Month along with her father Scott Ottenheimer. (Photo courtesy of Rep. Katz Muhl)